Allgemein

In der aktuellen Ausgabe der Monatsschrift Kinderheilkunde finden Sie unseren deutschsprachigen Artikel zu NETRE und PATRE. Dieser ist hier online frei zugänglich.

We are happy to announce that our new page to create awareness of Sunflower syndrome is online . You can find all the information on Sunflower syndrome here.

We are excited to announce that the first data from our SYNGAP1 medication survey is available.

Our data were presented in an EPICare webinar by our team member Celina von Stülpnagel. You can watch it here (after registration) and download the slides here.

PATRE is a project by the Research Institute for Rehabilitation, Transition and Palliation, PMU Salzburg, Austria. It is the patient-based sister project of NETRE (scientific article on NETRE).

The project leaders are Kirsten Eschermann and Lorenz Kiwull.

The team also includes is Prof. Dr. med. Gerhard Kluger, PD Dr. med. Celina von Stülpnagel-Steinbeis, Dr. med. Till Hartlieb and Prof. Daniel Weghuber as scientific advisors.

As part of NETRE and the PMU Salzburg, PATRE is a collaborating partner of European reference network ERN EpiCare.